Tag Archives: #beingvulnerable

Depression…

Depression, by definition, is a mental condition characterized by feelings of severe despondency and dejection, typically also with feelings of inadequacy and guilt, often accompanied by lack of energy and disturbance of appetite and sleep. There are many different types of depression, and it is often stigmatized. It isn’t discussed openly and without judgment. To say that at some point in our lives, everyone experiences some form of depression would be fair. Life is unfair and hard. Sometimes it kicks us when we’re down, and it takes us a little bit to get back up.

Some people have an easier time breaking through depression. Some people are able to develop healthy coping mechanisms, get on medicine, or go to therapy. They are able to overcome that fight against their mind. But for some of us, we suffer from clinical depression. Clinical depression can be managed, but no one ever really talks about how hard it actually is to manage.

Every day I battle my brain. I battle the thoughts that my depression brings to the surface. Some days my brain wins and some days I win. On the days when my brain wins I don’t typically spend my time in bed with an unhealthy appetite. My depression is more of a high- functioning depression. My working constantly, some of my humor, my constantly pouring myself into others, and my “toughness” aren’t always what they seem. My coping mechanisms aren’t always healthy and I am becoming well aware of that and them. All of these mechanisms have been beneficial to me and got me through some of the darkest times in my life. I fought tooth and nail, I battled my body and my mind, and I overcame it all. I refuse to be ashamed of them, but I am working on healthier ways to cope.

But those days when my brain and the depression win, those days are hard. I have people who are here for me when I need to talk, but sometimes the idea of talking is easier said than done. Talking openly and freely about depression is hard. The fear of getting judged is always there or the fear of not being understood. The emotions that come with depression can be overwhelming, especially when you’re trying to explain it to someone else. Every time I talk about the days when my brain wins I can hear how ridiculous it all sounds, but yet I still believe what my mind feeds me.

Recently, my brain has been winning a lot. I can’t seem to communicate what it is I am feeling appropriately with anyone around me. I have always done better with writing things and emotions. Maybe because I was conditioned to always be strong and not show my emotions in front of those who care about me, because it was too hard. That’s why I hate crying in front of anyone. I feel weak and for me being weak or vulnerable wasn’t an option. I had to be resilient, but guess what? I am not as resilient as every one thinks. I haven’t written much of anything the last 14 months or so, and it’s because I haven’t felt my words were worthy or important enough. But I am going to write about my depression lately here, maybe just maybe it can help someone else.

When my depression gets bad, I isolate myself. I push everyone away. I don’t know how to tell them what is going on and I tend to think it is easier to deal with by myself. I keep myself busy because my mind is constantly racing. It races with thoughts of failure, body dysmorphia, sadness, and inadequacy. I feel a million miles away from everyone in my life. I feel like I am not good at anything, jack of all trades but master of none. I beat myself up for not being happy and feeling bad about myself. I view myself in a light that is so negative its embarrassing to tell anyone. I get uncomfortable in my own skin and dislike my body. I view every blemish, wrinkle, and any jiggle as something to be ashamed of. I hide my tears, cry silently alone in the shower or while I lay in bed thinking of all the things I have done wrong. I resent myself for living paycheck to paycheck and tell myself I bring nothing to the table. I fear resentment from my loved ones because I think they’re going to view me in the light I am viewing myself. I doubt myself and I hate my brain. I get angry at myself for not being able to win the fight against my brain. I feel lost and all the while I put on a brave face and continue to work and pour myself into others. I suffer in silence and feel hopeless. Depression makes you feel hopeless, unworthy, inadequate, ugly, and little. It is dark place and it is hard. Sometimes I get to the point where I feel like I could explode with sadness and anger.

I am in therapy and I am learning healthy ways to overcome my depression. Most days I win and my self talk is positive, but like many other things in life, I get in a rut. The only thing that usually helps when I am in a rut is making some drastic change in my life and let’s be honest that doesn’t always help in the long run. So this time I decided I was going to write about it. I was going to openly and freely discuss it.

I appreciate when friends reach out and tell me they’re there for me, I really do. However, it isn’t easy for me to talk. I tend to just cry because it all floods to the surface. It gets too overwhelming to talk and makes me feel worse. I never share these aspects of my life or mental health for sympathy. I share them to help others find the courage to talk about what is going on in their life, or to make sure someone doesn’t feel alone, or to help people understand what they don’t know. I may feel bad about myself a lot with my depression and tend to feel lost. But if I can help de-stigmatize mental health for others then I can be proud of something.

Home

After I got out of a toxic relationship and had nowhere to go, I moved back into my mother’s house. I thought, “oh, I’ll move home and heal myself.” That whole you can’t go home again, is completely accurate. The place I grew up that was once a sanctuary for my soul felt foreign to me. I found myself desperately searching for a place that felt like home.

I soon realized that I could continue to search for “home” in a million places or people, and I would always be disappointed. That feeling of home, that sanctuary for my soul, would only be able to be found within myself. I had lost myself, and that’s why nowhere and no one felt like home.

I started the steps to finding myself again. To rediscover who I was after such a toxic relationship and life-altering events that I chose not to deal or cope with properly. I had a lot of healing to do. I put myself in therapy and began to face all the trauma that happened throughout my life. Some of that childhood trauma I had already healed from without realizing I was doing it. All of that medical trauma that my body held on to and my mind protected me from was my most significant feat. The relationship that left me with severe self-esteem and intimacy issues was a cakewalk to heal from compared to the damage living with heart disease has caused.

I started to set boundaries and work on processing the dark thoughts and emotions that came from the bad news. I began to truly understand who I was as an adult and after a lifetime of chronic medical issues. I found a sanctuary within myself. I found my sense of home. It took three-plus years and a fantastic therapist, but I was genuinely comfortable with myself. I had a strong sense of self. I was happy and content. I did not want to disturb it either. I wanted to ignore anything medical-wise that was going on because it threatened my peace. I was also against letting anyone in that could disrupt my home. I was heavily guarded and selective. Then things changed.

After multiple ER visits and failed medications, I could not ignore my health and the disturbance it was creating. While I felt like things were starting to collapse, I worked feverishly on keeping what peace I could within my home and sanctuary. I worked on what I could control. Then came along a guy. One that caught me completely off guard. Someone who had been right in front of me and I didn’t think twice about. I honestly wouldn’t have even given him a chance had he not shown he was interested in me. I was adamant on not wanting to be in a relationship.

Shortly after we started to date and moved more toward the serious side of things, my health started to implode. Heart surgery. A minor surgery but nonetheless another trauma-inducing situation. I was still guarded and working avidly on trying to let him in. Trying to be open about my mental state and my fears, but it felt like I was swimming against the current. I was trying to navigate familiar but rough waters and let someone help me swim. I only knew how to swim by myself.

Things started to calm down and return to our “normal,” and then the beeping happened. Late one night on the couch, I heard it. It’s crazy to think how a rhythmic beeping can completely derail someone, but it did derail me. Once I realized that beeping was coming from within my chest, I completely panicked. I was paralyzed with fear because no one told me what happened after the beeping. I was expecting to get shocked again, and I laid on the couch trying to prepare myself to be shocked again with tears soaking my face. That beeping lead to yet another surgery. Again a minor surgery, but it left me with more trauma. This trauma was my final push over the edge. This trauma and that damn beeping triggered my flight or fight mode. I haven’t been able to turn that flight or fight mode off since surgery. My nervous system is in a constant heightened state, causing me to be on edge ALL of the time. This is also known as PTSD.

Chronic PTSD is common when someone suffers constant medical trauma. I’d say ten surgeries in total could be considered constant medical trauma. Needless to say that my home and sanctuary I worked so hard to build has been absolutely demolished. I have been an absolute disaster since February. I have been on edge, filled with anger and rage. Things that would have never bothered me before are now setting me off. Then I have days when I can barely keep myself from falling apart. All the while, I’m trying to figure out my relationship and how to let someone else in, how to communicate what’s going on with my body and in my head. How to have a normal functioning relationship when right now nothing about me is normal and functioning. Anytime I’ve let someone, who wasn’t biologically programmed to love and care for me, see this extremely vulnerable side of me, I’ve been disappointed. As much as I loved them and wanted them there at that moment, after the surgery, when things got really tough for me, I was always let down. I was shown that it was easier to depend on myself. Creating a sense of hyper-independency.

Hyper-independence with the inability to ask for help and PTSD makes being sick and in a relationship so easy 🙄. And now my health is getting worse. Memorial Day weekend, I ended up in the ER. On my way to work, I had to pull over because my heart was going crazy, and I was so lightheaded I thought I would pass out. Then I ended up in the ER again a week later. No real answers and a ton of questions. Multiple conversations with multiple doctors later, I had an echocardiogram, wore a heart monitor, had a tilt table test, and downloaded the data from my new pacemaker. In the meantime, I had done my own research and could already tell from my symptoms what was going on. Then I got the call of, “you have decreased function in your right ventricle,” on my birthday with no further explanation. I had to wait a week for the final confirmation that my pulmonary valve was leaking again and causing all my issues, well, I think most of my issues.

Here I am, sitting in my house on my couch, three dogs and a boyfriend sleeping on me, and I’m happy. I’m happy at this moment. Happy that I have someone who is willing to be there when things are bad, to be patient with me when I’m an emotional basket case, and to ask questions to do his best to understand. I’m letting someone into a home that I no longer have. My body and my mind are out of my control. I’m once again in medical limbo. I know what’s to come, and I think that makes it worse this time. I know how bad things will get before they get better, and I know how hard the recovery is, not just the physical but the mental recovery. I’m going to have to rebuild my home, my sanctuary, and figure out life with a new valve and a new scar.

Trauma changes you. It re-wires your brain. Recognizing your trauma and working actually to heal also changes you. The amount I have changed and the person I’ve become is astonishing. Mental health is so essential for a taboo subject. Your trauma can spill over into your relationships. Identifying it so you can communicate it properly is equally important. Remember that you can look for that feeling of home in another person or different places, but you’ll never truly find it until you realize you are your home.

In the end I just want things to be simple…

It has been months since I have sat down and wrote anything for myself. I haven’t written anything outside of school or cards. Writing is one of the best outlets for me. Honestly, I have not done any of the things I typically use as an outlet in months. I have been in such a weird place. I have been in this strange survival mode, and when I finally got out of that, I was in catch-up mode. Only to go right back into survival mode and to now find myself back in catch-up mode. It’s been a vicious cycle. I tell you what, survival mode really messes with your psyche. There were points over the past four months where I felt like a stranger to myself. I felt as if I were outside of myself looking in. I did not recognize myself. It had been a few years since I was in full-on survival mode, and I had honestly forgotten how dark that could get. It sometimes felt as if I was swimming against the current, and even though I was doing everything in my power to stay afloat and fight, there was no outward progress. When things get that dark, I tend to become overly critical of myself. Who knows why? Maybe my therapist could tell me, but I re-evaluate every little thing. I judge myself for everything. I overthink EVERYTHING. I have felt distant from everyone in my life since November. I felt like I was unable to really connect with anyone at all. I’ve been in my head over-analyzing.

Feeling like you can’t connect with anyone will mess with your head too. I have all of this stuff I want to say and want to discuss, but I’m distracted. I can’t engage properly, and then I felt as if everyone could see it. There were times where I would be talking to friends, and it just felt forced. Or awkward silences while sitting with my boyfriend where I thought he was thinking to himself, “what am I doing?” I know that I only felt these things. I was the one feeling disconnected. I was the one in a dark place and lost in the aftermath of survival mode. Recognizing this doesn’t make it any easier. The depression that creeps in isn’t talked about. There is no preparation for it, even if you know it’s coming. It’s serious. So severe that I stand in front of the mirror and cry over the changes in my body. When I know, I should be patient and give myself a break, but I legitimately have no control. Or when I am feeling disconnected and behave differently, all the while knowing I am acting differently. When you’re in survival mode, nothing matters but getting through the hurdle in your way. Everything hits you after the fact. The laying in bed worrying about complications in your surgery or that what if’s that could happen aren’t mentally dealt with until it’s all said and done.

I’ve sat awake at night recently trying to process all of this. I am trying to mentally claw my way out of this darkness that is in my head. The only positive that comes from this darkness and survival mode is that when you’re overthinking and criticizing yourself, you have these moments of clarity. Or what others may refer to as spiritual shifts, epiphanies, realizations, etc., whatever you want to call it. At least for me, I prioritize things. I get a chance to see what really means something to me. I can see how I need to shake off the fluff and focus on what matters. With my surgeries and 2020 being the mess it was, I’ve had points when I shook off the excess and tried to refocus. I’m currently in a position of refocusing and slowly getting out of my depressive state, and prioritizing.

Things I thought mattered now seem so ridiculous. All the things I thought I once wanted seem like a different life. The person coming out of this darkness is one I don’t entirely recognize. I’m now a much simpler person. The thought of, “what if I don’t wake up from this surgery” or “what if while my pacemaker is out or off I go into v-fib and that’s it?” All of those kinds of thoughts change things. Over the last 15 months, I’ve realized how much I want a simple life. I want comfort and meaningful moments. I don’t need to have the nicest and newest things. I don’t need a bunch of convenient friends. I’d rather have a few close ones. I don’t need the fluff, the excess, the materialistic crap. I want a quiet life somewhere where I can have all the dogs. Go on vacation when I want to so I can continue to broaden my horizons. I want a roof over my head, food on my table, and, honestly, dirt on my hands and the soles of my feet. I want more meaning that makes sense to me. I don’t care how it looks to others. All my tears in front of the mirror over new scars or a few extra pounds need to mean something more.

My body went through hell twice in ten weeks. My mind hasn’t come out of hell in the past four months. Making the changes to get me to the place I want to be mentally will be a process. I just want a simple life that when I lay in the bed before my 11th surgery, which will inevitably happen, and I think, “what happens if this is it?” I want to be content with my answer. I want to be able to say that my life has been all I ever wanted it to be. I don’t want to have doubt or wish I would’ve done things differently. I want to be able to walk away with my mind and heart strong enough to keep the darkness out. I don’t want to lose myself and avoid my outlets. I don’t want to feel disconnected. I want to look in the mirror and not have a meltdown because I’m bouncing back from surgery. I just want simple.

Be quiet…

One of my goals for myself this year was to learn how to be quiet. I have a need to fill the silence with anything. Music, my voice, TV, anything that can cut the silence. The silence was always uncomfortable for me. It made the thoughts in my head that I was trying to ignore oh so loud. My anxiety would take over. With this constant need to fill the void that I felt silence created, I missed out on so much.

So, I decided that I would slow down and accept silence. I would practice the art of being quiet. I started being quite more when around my family. Not because I didn’t want to talk to them, but because I wanted to really hear them. You’d be surprised what you can learn about someone when you sit in silence with them. Or when you shut up and actually listen to someone other than yourself talk.

I didn’t explain this goal to anyone. I decided it was something I was doing for myself, and it was better left unsaid. When I got back from my trip to Hawaii with my sister’s family, she asked my mom if I had fun because I was quiet. This broke my heart a little. My sister thought I didn’t have fun because I was actually quiet for a change 🤦🏻‍♀️. I was so quiet because I wanted to be genuinely in these moments with them. I tried to soak in every little detail. The experience, the scenery (which will leave you speechless anyway), and all those little moments with them that I’ll never get again. I was quiet and present. I loved every second of that trip with them, but my seemingly sudden behavior change had my sister confused.

This year has been the perfect year to start the practice of being quiet. As we all know, this year has been a shit show. All of the unknown, drastic changes to normal everyday life, and forced quality time with your loved ones, known as quarantine, I honed my ability to be silent. I’ve finally mastered the art of comfortable silence. I no longer feel a need to fill a void.

This morning I wasn’t able to fall back asleep after being woken up. Most mornings, it’s easy for me to slip back into slumber, but today not so much. I laid in bed. The only noises were coming from my fan and Eleanor with her labored breathing. Staring at my ceiling, I was overwhelmed by the stillness. The stillness I tend to miss because even when being quiet, I’m usually moving or active in some way. I eventually moved myself out to my back patio. Sitting here now, I’ve listened to birds and neighbors awaken. I’ve watched the sun slowly creep into the sky. I’ve heard Eleanor and Herschey hunt for lizards. I’ve felt the air go from crisp and slightly cool to humid and warm. I soaked in all of this because I woke up with the weight of the world on my shoulders. I was lying in bed this morning, and the shock of yesterday had finally disappeared. My indifference was gone and an overwhelming heaviness was sitting in my chest. I felt the need to sit in silence and observe. I feel the need to be quiet more than ever now. The need to soak in every second of the next 5 1/2 weeks.

Being truthful…

Virginia Woolf once said, “If you do not tell the truth about yourself, you cannot tell it about other people.” When I write, that is what I try to do. I try to tell my truth. I try to make sure that when I tell my story, I try to be unapologetically truthful. I talk about things we all try to keep hidden, anxiety, depression, mental health awareness, etc.. I try not to be redundant in my writing, and I try my hardest to be relatable. To let others know that they’re not alone. We all have heavy stuff we carry.

My life has been filled with heaviness. Heaviness that I have a hard time sharing with others. Heaviness that eats away at me. Writing has been my way to lift some of that weight. To be able to talk about it. To be able to grow as a person. The last couple of weeks have been profoundly heavy on me.

The saying when times get tough, you find out who your friends are, is true. Over the past few years, I’ve let go of people who showed me they were only surface friends. In the last six weeks, I’ve learned a few more hard lessons with friends. People whom I would’ve bent over backward for proved themselves not to do the same. I’m aware that we’re all at ages now where we are adults and have our own busy lives, but part of being an adult and a friend is knowing when to be there for someone else. Those of you that have been there that have genuinely cared to know the real answer to “how are you” and those of you that have shown up; I can not thank you enough. You’ve helped me open my eyes to who is more than a surface friend. I’m finally at peace with my circle becoming smaller.

The last six weeks weren’t just about opening my eyes with my relationships in my life. There was a great deal of reflection about my life. I’ve repeatedly been told my options are limited and I’m complicated. I’ve come to have a love-hate relationship with this complexity. I love that everything about me is complex. I’m a light, bubbly person, but once you get to know me, you see that there is much more beneath all of that. As my best friend, Madison, told me last night, “there’s so much concealed under your outgoing, upbeat personality.” She’s not wrong and what she said sat with me all night. I love the complexity of my being in that sense but hate it in the medical sense. Being complicated in the medical world is not a hidden beauty. It’s messy, and no one wants to be messy. It’s caused me to be filled with fear. I live every day with fear. Fear of the unknown because the unknown in this situation usually points to death.

People are always saying things about how quickly life can change and how we need to live in the moment. How often do you find someone doing that? I feel as if we only think about life that way when something terrible happens. In the last few weeks, I’ve repeatedly told myself that if it doesn’t bring me happiness or serve me in a positive manner that I need to cut it out. But we rarely take our own advice, do we? It wasn’t until I spent a Tuesday morning with my friend Lilly that it all came full circle. Everyone needs a Lilly in their life, and for those of you that know her, aren’t we lucky. She has provided me with an endless amount of entertainment, a safe space, and a love like no other. Sometimes we view things differently, and one of us has to adjust our outlook to overcome the disconnect, and that, my friends, is a healthy friendship. So, we’re sitting on her couch on a Tuesday afternoon after having a good morning. I’m getting ready to leave for a doctor’s appointment, and she can visibly see the fear on my face. For some reason, just to have her acknowledge that she can not begin to comprehend my fear, but has genuinely tried to, as well as how much she sits with it because she loves me, was precisely what I needed to hear. I felt seen at that moment. I had someone look me in the eye and hold back their pain to tell me that they didn’t understand mine, but they tried to, and she wasn’t going to give me advice but that she supported me in whatever choice I made. This was exactly what I had needed at that moment, and Lilly tends to always deliver in those moments of need. I found myself reflecting on our conversation the whole way to Pensacola, reflecting on how I needed to take my own advice, how I needed to remove things that no longer positively serve me. I need to do what makes me happy and stop caring if others understand what that looks like because I have people other than my family, like Lilly and Madison, who will always support me. I have friends that are genuine.

So now I’m at another turning point in my life. I’m lying in a hospital starting a new medication that has the potential to help me or severely cause damage. I’m discussing possibly having another surgery. With all of this unknown and all of the potential life-changing things that can happen, I’m trying to remind myself that I need to take my own advice. I’m no longer going to sit at tables where I might be the topic of discussion when I get up. I’m going to stop caring about what my happiness looks like to others. I’m going to continue sharing my truth even if others don’t understand why. I’m going to try to continue to share my heaviness and make sure others know they’re not alone. I’m going to try and live unapologetically.

What do I need…

Yesterday during my weekly therapy session, my therapist and I talked about my health. This is usually the topic of discussion and one of the main reasons I put myself in therapy. I finally opened up a little deeper yesterday. See, I have a tough time truly opening up and letting people in. I’ve got these large walls I’ve built when it comes to certain parts of me, and my health is one of them. I talk about it lightly with others because if you get too “real,” it frightens people.

I see the fear and sympathy in everyone’s eyes when I don’t talk about it lightly. When I start to talk about the heavy stuff, people rearrange their faces, so I can’t see their discomfort, but it’s all in the eyes. Your eyes reveal all the things your face isn’t saying. That’s one of the reasons I focus on someone’s eyes when I first meet them. I digress, I can see the sadness in their eyes. I can see my friends and family getting upset. When I see this, my tough exterior goes into effect, and I stop talking.

I know that those who care about me are allowed to feel a certain type of way. They’re allowed to be upset and think things are unfair. Lord knows I do. I’ve cried what I could only imagine the amount of tears that could make up a large body of water. But herein lies the problem. Majority of them are thinking about how it effects them if something happens, not how this truly effects me. The problem with this is a dynamic has been created that’s even more unfair. I always have to be the strong one. I can’t show too much emotion because it triggers fear in those that care. If I stay collected and calm about it, then it must be okay, right? Wrong! Instead, it makes it very lonely for me. Those first few moments I’m alone after these exchanges, I break down. I get in my car, get to the end of the street and sob into my steering wheel. Or I wait until I’m home, then I sit in the shower holding myself while sobbing.

I’m starting to reach the end of my rope with this dynamic. I’m finally beginning to be brutally honest. When asked if I’m okay, I’m finally admitting the answer is no. I’m talking about my health more matter of fact and not sugar coating it. Maybe this is my way of coping or maybe it’s because I’m tired of feeling so alone in this. What I’ve learned over the last 5 years, is that people don’t want to know the truth. They want a version of the truth. For years I’ve been giving everyone a version of the truth and hiding this huge part of myself.

I’ve written about how I resent my health and heart about how I never wanted it to define me and how I’ve fought so hard to be someone outside of my heart conditions. Yet they consume me. If you’re ever with me and I’m looking off into space with my mind racing, you can bet that 98% of the time, I’m thinking about my heart and all it entails. It creates fear and anxiety that is hard to describe. It eats at me from the inside out. I don’t want it to define me or be my whole life, but it is what makes me, me.

Lately, I’ve been wholly consumed, overwhelmed, and distracted by my health. Every skipped or extra beat creates panic. Anytime something feels off, my mind immediately goes to the worst-case scenario. I’ve been trying not to get my hopes up because I’m yet again in a situation where everything in my life is barreling forward except my health. So, for the last few weeks, my therapy sessions have been all about my health. Yesterday my therapist asked me what I needed from others, and I honestly couldn’t answer the question. I don’t know what I need because, on a deep level, I always deal with this on my own. I don’t let anyone help me with the deepest darkest parts of it. I get told, “you’re so strong,” but honestly, what other choice do I have?

What do I need from others? I could use a conversation with someone where I can’t see the discomfort in their eyes. I could use an emotionless discussion—one where I don’t have to sugar coat it. I want not to have to worry about how this is affecting the other person for just one conversation. I wish not to feel a level of loneliness that consumes me even in a crowd of people. I want for someone actually to understand what it’s like for me. I wish for my therapy sessions to be about the common problems of a newly 30-year-old, like dating and developing relationships, making good career choices, or nonsensical problems.

Describe yourself…

Recently I’ve been asked to describe myself to others. Or to tell someone about myself. I never know how to answer this question appropriately. I don’t think someone wants to hear how I would describe myself or how I see myself. I don’t think it would come out in a socially acceptable way. I’d much prefer to hear how others see me. So I thought about it long and hard. This is how I see myself.

Last night while driving with my windows down the hot, humid air on my skin, and The head and Hearts- Rivers and Roads turned up, I felt overwhelmed. That kind of overwhelmed that makes tears silently fall down your cheeks. Something triggered an emotion that was just under the surface and was needing to be released. There it was a few simple tears while singing the words that were making the emotion show itself. This happens to me a lot. It is situations like this that made me realize that I was a little different.

I always knew I was a little different, and I knew at a young age. Not the kind of difference where I don’t have friends and was socially awkward. The type of difference where I didn’t fully relate to others. I have always had what has been described as an old soul or sad eyes or a sense of sadness about me. Many different people, from family to strangers, have told me this. “It’s that tortured soul that makes you artsy” or “You can tell you suffered trauma, and you carry it.” Doesn’t everyone suffer some kind of trauma? I mean, hell, no one has perfect parents or a perfect life. Isn’t that what makes us human? I know I am a little damaged. I was born damaged, and I do carry the weight of that with me. I have experienced emotional trauma because I’ve allowed myself to be vulnerable. And the older I get and reflect on myself, the more I grow and find myself, the more I realize that maybe there is a sadness to me.

Maybe I’ve always known it, and that’s why I’ve felt different. Perhaps that’s why I talk too much. I talk to distract so it isn’t as noticeable or I’m too boisterous so you can’t see that it’s there. Because being different wasn’t something I was okay with, and I’ve always cared what people thought of me. I have overcompensated my whole life just to please others. The more I grow, the more I am embracing this part of me.

I like sad books, movies, and songs. Especially the songs. I’m a lyrics person. When I can relate to a song, it’s because I can tell that the person who wrote has the same sense of sadness to them too. Hell, I’m the person that cries when I hear a song that moves me—case in point, last night. I can recognize this sadness in art. In paintings, sculptures, and photographs. I like stories that are real and raw. That don’t have the perfect ending. It creates a beautiful kind of sadness. I would describe it as an air of melancholy. Maybe I have it because I am such an empathetic person. Or it’s the trauma. Or it’s that I have an old soul. Or perhaps it is because I am meant to show it to others, in the hope that it moves them.

I’m the kind of person that finds solace in little things. Like when I’m feeling sorrowful I want to go outside and stare at the stars and moon. Or go to a library or bookstore and get lost in the stories. Or drive with the windows down and a song filled with emotion turned up. Or go to the beach and become engulfed by the water. I want to feel everything in those moments.

I’m also the kind of person that is full of contradictions. I want to be fiercely independent but have someone that will take care of me when warranted. I like to be alone but feel lonely. I am creative and lazy at the same time. I want to feel everything and, at times, nothing because it’s so overwhelming. I want someone to see me truly but I have walls I’m not sure anyone can handle. I am afraid I’m a disappointment to others, yet I demand respect and hold myself accountable. I’m all over the map, and I know it. I know that I’m different and sorrowful. I’m empathetic and constantly overwhelmed by emotions. But how do you tell a stranger that? That’s never the things they want to hear. They want you to list off your accomplishments or generic descriptions about yourself. They don’t want to hear, “I like sad music and have an annoying laugh.” Y’all my cackle is out of control, and I know it. Earlier my friend told me my laugh was angelic, and I thought, “yeah, okay, for sounding like a demon is cackling.” I’m sorry if you’ve ever heard it.

How does one describe themselves in a light that doesn’t reflect that they’re their own worst critic? The guilt we feel for our failures and moments of harshness. Or the insecurities we have with ourselves. If we only focused on the good things, we’d come off as conceded. I can’t appropriately describe myself with accomplishments and generic descriptions. I’m full of failures and depth.

Mental health…

I’ve been in my own world lately. A world filled with doctors visits, medical testing, sleep deprivation, and anxiety. I’ve been working extremely hard at not letting myself spiral down a deep dark hole of depression. When I say working extremely hard I mean doing everything humanly possible to keep myself from completely shutting everyone out and becoming 300 pounds while binge watching everything I can stream on my TV. I haven’t been the most hands on version of myself when it comes to my relationships. I have not been the most attentive friend, sister, daughter or granddaughter. The balance between keeping myself from being consumed by my anxiety and being present is a tiresome battle.

For the last several months I’ve traveled to New Orleans, Nashville and Pensacola to see doctor after doctor. Trying to find some rhyme or reason to why my heart and oxygen seem to do whatever they want. For 13 months I’ve been dealing with trying to get a handle on my tachycardia and all that comes with it. I have requested referrals to see specialist. I have tirelessly fought to find a solution. Recently I discovered my oxygen levels like to dip down a little too low. Hence my recent photos with a nasal cannula or an oxygen pack strapped across me. Also you can notice my increasingly dark circles under my eyes. All of this has been consuming. Wholly consuming. Mind, body and soul. It’s taken EVERYTHING in me to maintain my sense of humor and to keep my head above water.

To all of you I keep sending photos like this to…you are welcome!

I constantly feel like I’m treading water. I have days where getting out of bed seems like the hardest thing I’ve ever done. I have days when making my bed is my biggest accomplishment. Most nights I toss and turn, stare at the ceiling, and mull over every possible scenario that the doctors could throw at me. I’ll be in a room of people and not be present. I get lost in my thoughts at times while having a conversation with someone I won’t have heard a word they said. I get tired of talking about it and feel like everyone is tired of hearing about it all. Mainly because I never have answers. I keep having to ask off of work for appointment after appointment. I’m afraid to ask off for a mental health day and I’m needing those more increasingly. Even when I am at work it’s hard to stay on task, my mind is always elsewhere.

For those of you that follow me on social media and see all of my self care posts it’s because I am struggling. It’s because I need to be reminded that depression and anxiety are normal. That I need to be told from time to time that it’s perfectly okay to not be okay. So I post it to remind myself and because I know that someone else might need to be reminded that they’re not the only one going through it.

Last time I wrote I had just been called a “ticking time bomb” by a doctor. I then waited days to hear from a team of doctors that they all agreed. That I was too complex of a case for them. I was consumed with anger and frustration. My mood has since turned into one of worry, fear, and doubt. My weight is fluctuating. I’m stressing so much my skin is breaking out. Some days I stare into the mirror and think, “what if this doctor can not do anything? What if I have only two extreme options? One that results in more side effects and ailments. Or one that could result in paralysis and relying solely on a battery to make my heart function?” What do I do then? Do I risk the extreme? Do I continue to fight and be “brave” or do I let go? Give up and live life like I am in fact a time bomb?” Do I do that whole “live life to the fullest” thing that we all say we will do? Live with no regrets. Stop waiting for my life to happen after I get well and just accept that at any moment my heart could stop beating. That my defibrillator could go off and revive me until one day it can’t. Do I risk it and fight or do I live my life until I succumb to ventricular fibrillation? Hence my aloofness as of late.

These questions are debilitating. They weigh heavy on my mind, my soul and my physical body. My sisters recently joked about why I take such long showers. They said I was contemplating life in the shower and well, they are right. I get lost in the hot water and steam. I imagine scenario after scenario and how I will handle them. But now I am doing that all the time not just in the shower. I’m fighting for answers and fighting depression. I constantly get told by friends and acquaintances how they admire my strength and grit. But I feel like such a fraud when complemented by them because I feel anything but strong. I put up a great facade of humor and strength, but I’m struggling to not cry constantly. Every time someone asks about my appointments, asks how I am doing, or every time a stranger stares at me toting around my oxygen. I needed to break my facade and show everyone that I am indeed struggling. I am fighting for my life right now. A life I want to live and I live that I have been greatly blessed in. I have a very dysfunctional family that I wouldn’t trade for the world. They’re my biggest support system and despite not always seeing eye to eye, they have NEVER let me be alone in anything I do. I’ve also managed to be blessed on the friend front. I have somehow managed to find some of the most amazing individuals who support and understand me. They check on me regularly and love me endlessly. I haven’t been the best or greatest friend lately and ultimately I know everyone will understand and accept it. Depression and anxiety are a hell of a beast.

The whole purpose of this post is to let others know that the taboo of discussing your depression and anxiety is not okay. Tell someone what you’re going through. Don’t put up a facade. I can not reiterate enough that it is OKAY TO NOT BE OKAY!!! Go to counseling and don’t be ashamed of it. When someone asks “are you okay” say no. This post was not for attention but for help. I want my words and my story to be read by someone who also has days where getting out of bed seems like the hardest thing they’ve ever had to do. I want them to know that being open and honest about struggling is perfectly normal. I want my story and my words to help. I want people to know what I am actually feeling and going through. That social norms and expectations set by society and social media are not how we have to live life. That it’s okay to feel sad and to try to get help for that. That by taking care of yourself you will let others down and you don’t owe anyone an explanation when that happens. For those of you that sometimes feel like giving up, don’t. Keep pushing. Keep trying. Find your meaning. Your soul satisfying moments and relish those. Keep fighting that deep dark spiral that is depression even when you feel like you can’t. Take mental health days and don’t feel guilty. Cry in the shower or on the bathroom floor. Feel it and learn to let it go. Continue to move forward even if it’s at the pace of the tortoise not the hare.

Sick and tired of being sick and tired…

I would like to know what it is like to not be complicated. To not be so completely complex that you feel like you have no control over your own body. To be genuinely healthy and to not live in fear. I was asked the other day what my main concern was with all of the electrical issues going on with my heart. My answer was simple. I fear that I’m going to go into V-fib and be shocked and hurt myself or someone else. I’m afraid it’ll happen when I’m driving and I’ll cause an accident. I’m afraid it’ll happen when I’m awake and alone and I’ll fall hitting my head or hurt myself worse. Most of all I am afraid that there is no solution to my particular perplexing issue and that it could be my demise.

My whole life I’ve been rather challenging. The punishment was always worth the crime as a child. I always pushed my limits with my parents. I tend to tell the truth when people aren’t ready or used to it. I’ve been an ever-evolving person. I’ve had many stages in my life and I’ve only recently really come to know who I am as a person. My emotions have always been complex and so has my personality. I now appreciate my peculiarities and obscurity. Besides my challenging and evolving personality, my health has been a whole other beast.

While I have made it well known my heart has always been far from normal. It’s been something I’ve fought against and resented my whole life. I didn’t want it to define me and that’s exactly what it has done. It’s what makes me who I am. It’s consuming. While all of my friends and family would describe me as strong because of it I feel completely at its mercy. It started out abnormal, which to me is kind of ironic because I feel like I’m a little anomalous as a person, but it’s grown to be quite literally one of a kind. My particular malfunction in the heart is not a structural problem anymore. I’d kill to go back to my valve being the only serious issue. An easy answer and an easy fix. Structural issues of the heart are simpler, but no, I have to continue to be challenging.

A lot of you are not in the medical field and don’t know medical terminology and don’t exactly understand how it all works. Your heart has an electrical system that makes it beat correctly. That lub dub you’re supposed to hear occurs because of the electricity flowing through your heart. My heart, however, likes to have premature ventricular contractions(also known as skipped beats) at an abnormal rate. It also likes to go into ventricular tachycardia, which means my heart beats WAY too fast. I just learned the other day that one area of my heart was beating at 300 beats per minute during one of these spells. When this happens my heart feels like it’s beating out of my chest. Also when this happens my heart gets stuck in this rhythm of beating too fast to actually pump. When this occurs I am not getting oxygenated blood throughout my body because my heart can’t efficiently pump it out. When it’s stuck like this the muscle then begins to spasm and not beat all. That is known as ventricular arrhythmia and ventricular fibrillation. My pacemaker is designed to try to pace my heart back into a normal rhythm and when it cannot my defibrillator kicks in. If I didn’t have my pacemaker/defibrillator I wouldn’t be here today. I have had at least one spell of ventricular tachycardia and arrhythmia every month this year. I’ve had more but there hasn’t been one month without. I could have died at least once every month this year without my ICD(implantable cardiac device).

Finding this out and being told just how severe and serious of a case I am has been absolutely overwhelming. Honestly, there isn’t a word to describe the emotion I am feeling. I knew it was serious and I know that I downplay it to everyone else, but I can’t anymore. I can’t pretend I am okay and that I am normal anymore. I can’t mask my fear and uncertainty anymore. It is so exhausting physically because of the arrhythmia and the high number of PVCs I have regularly. I am extremely symptomatic with it all and it physically drains me. Also, being so emotionally concealed and strong for everyone else is beginning to take a toll. Completely relinquishing myself to the fact that I am not healthy and will never be medically “normal” is proving to be difficult and incredibly depressing. I’ve got a lot of uncertainty ahead and it’s not going to be easy. From starting a medicine with a black box warning label and severe side effects to accepting that there may never be a solution. It’s going to be a tough journey with a lot of ups and downs.

To everyone that has reached out and to everyone that has respected the fact that I am not ready to talk, I thank you. I have a lot I need to process still. Emotions are all over the place right now. But I appreciate every one of you that is in my corner, thoughts, prayers, positive vibes and listening ears, you all mean a lot. I have some of the BEST friends and even better family.

Existential Crisis, party of one…

 Sitting here waiting on my parents to arrive for dinner, I was actually on time for once, and I find myself thinking…”Holy shit! You’re about to be 29!” Where did my twenties go? This panic has set in a few times over the past 5 months.

Where did my twenties go? Why did I think I had all this time to accomplish things? Why am I so unsatisfied with where I am at in life right now? Did I even do anything meaningful in my twenties? Questions like these have been plaguing me and leading to what I can only assume is an existential crisis. Quarter life crises are played out. I’m taking this one to a whole nother level.

Existential crisis is also known as that moment when one questions if their life has meaning, purpose or value. I’d say mine definitely started brewing after my brush with death in November. I started thinking about what if I wouldn’t have been lucky enough to have my defibrillator? Would my short time on earth have made a difference? Have I made a difference to anyone other than those genetically programmed to love me? With these circumstances and 30 looming around the corner, I find myself pondering the deeper questions in life.

Recently I had someone ask me what the one thing I wanted from life was and I did not even have to think about it before responding. I want to make a difference. I couldn’t figure out exactly how to communicate it at the time, it was late and there had been drinks involved, but after thinking about that conversation I now know how to convey exactly what I meant. I want to make a difference, not in the sense of changing the world, but in helping others. I hope that my kindness, vulnerability, empathy and hopefully my words can make a difference to someone. To help them in their journey through life.

How do I go about doing that? How do I figure out what I want to do in this life that will help me achieve my goal in life? I thought it was Nursing. To be a good nurse, the kind of nurse that makes being in the hospital bearable. My health made it clear that that wasn’t it and now here I sit almost 29 feeling a little lost. Do I continue to write and eventually write a novel? Do I work to eventually open my own book and record store, since books and music are things that changed my life? Do I work for a charity like the American Heart Association? Do I move or do I stay in my comfort zone? How do I figure out the answers?

In January I had someone recommend the book 30 before 30. As I have slowly read this over the past few weeks I have been all over the map. I have related to the author, been inspired by the author and been envious of the author. She writes about how she made a mess of her twenties and accomplished all these small goals she set for herself. While reading this book in public I get unsolicited advice from strangers like, “Don’t worry your twenties are for figuring things out.” First of all, this isn’t a self-help book and what exactly are we figuring out in our twenties? Did I do my twenties right? Did I make a big enough mess? Did I accomplish enough? Does anyone else feel this way?

I spent my twenties in serious relationships and having heart surgery. Reflecting on my twenties I guess I can say I have realized just how strong I am. I was put through emotional and physical hell with 5 separate heart surgeries, all differing in severity, and I overcame every obstacle thrown my way. I never gave up and I continue to fight to be the healthiest version of myself. I don’t accept the answer “no” from my doctors. I loved with all my heart and in two completely different ways, two people. I learned to let go and how to take time to heal from hurt. I learned to be careful with who I trust and what I won’t put up with. I learned that sometimes the tough decision is the right decision. I learned what a broken heart feels like and how cold the bathroom floor is at 3AM when you’re sobbing and wondering why someone doesn’t love you. Most importantly, I have learned how to forgive and grow from disappointment.

I have all these questions heavy on my mind and heart as I approach my golden birthday and I have the typical late twenty-something shit going on too. Will I be forever alone? Is there anyone worthwhile to date? Do I have too much baggage? Why am I dissatisfied with my job? Do you ever feel like an adult? Being single at 29 was definitely not where I thought I would be when I celebrated my 20th birthday with my new boyfriend. My ability to self-sabotage relationships at this point in my life is uncanny. I seem to either put my foot in my mouth or retreat into my shell (there is your turtle joke, Alexandra!) and become too nervous to be myself, to text or call first, or to innitiate anything. Navigating your late twenties trying to figure out when you’re supposed to feel like an adult and how to act like one blows. I feel stuck in a transitional state. Every decision I make has so much weight to it now.

All of this being said, or written out… whatever, it has made me decide to develop my own list of 30 before 30 goals. Some big, some small and some that may seem silly to others, but they’re my goals. My goals to make sure I successfully make a mess of my twenties and figure things out. In the last year of my twenties I’ll be bolder. I’ll fight my fear and text or call first. I’ll live a little more, unapologetically. I want to be able to go into my 30’s and know that I made the most of my twenties. Take this last year by the horns and “figure things out.” Maybe answer the question of what can I do to make a difference? It may seem like a silly goal to some, maybe naive or make me seem like a dreamer, but I don’t think that being a good person who wants to help others is a silly dream.

Since people relate to and like photos. Here are some photos of some of my birthday celebrations through out my twenties for your viewing pleasure…enjoy